PROM Bibliography - Hints and Tips
- For more information on types of instrument, see Instrument Selection
- Types of Instrument.
- We have limited the use of abbreviations/acronyms in the instruments
list, including only those which are very widely used (e.g. SF-36)
or more easily recognised by their shortened form (e.g. WOMAC).
- In general, we have adhered to UK English spelling (e.g. ‘paediatric’
rather than ‘pediatric’), but used US spelling where the
original instrument name demands it (e.g. Pediatric Quality of Life
- Not all instruments cited in the abstract of a record will be included
in the keywords – where, for example, the instrument has been
used simply for comparison or validation purposes, and is not itself
the focus of the study. So, searching for records with ‘SF-36’
in the keywords (using Box 1) will retrieve fewer records than searching for records with
‘SF-36’ in the abstract (using Box 3).
there are several instruments with the same name, e.g. the Index of
Well-being, we have tried to distinguish them by including the developer’s
name – so, for example, the keywords list includes the ‘Kaplan-Bush
Index of Well-being’ and the ‘Campbell Index of Well-being’,
but not the ‘Index of Well-being’. However, if you are
not sure which one you are looking for, use the ‘wild card’
(*Index of Well-being). Alternatively, use the
Free-text searching option.
- Where the author uses an instrument name which diverges from the one on
the standardised list, the standardised version may be indicated in
square brackets . Again, records including either version or both
can be retrieved using the Free-text searching option.
- A few instruments, for example, the Unified Parkinson’s Disease Rating
Scale, are generally clinician-assessed but sometimes adapted as patient-report
instruments. So, not all records where the UDPRS is discussed will
include this instrument in the keywords list.
- Utility measures (see Instrument selection
– Types of Instrument): initially, we aimed to include a
broad range of records referring to measures such as the QALY (quality-adjusted
life-year). More recently, we have tried to limit inclusion to those
records where patient-reporting is clearly involved.
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